"Stichting Tekenbeetziekten" (TBD foundation NL) is the major patient-driven foundation in the Netherlands since 2006
Contact Information
Social & Messaging
- Address
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workTick-borne Diseases foundation NL
International desk
P/a Ton Kuik
PO box 33
Capelle aan den IJssel
2900AA
The Netherlands
- More Information
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FOCUS ON SELECTIVE TOPICS
1. Children & TBD
2. Patients with complex persistent forms of TBD ("chronic lyme")
Funds are raised explicitly aimed at programmes for "Children & Lyme" and "Chronic Lyme"
More programmes are currently under consideration
GOALS & Inform-Inspire-Act-Learn
# RESEARCH, patient centered and (co-)funded, leading to BREAKTHROUGHS in understanding and conquering TBD
# EDUCATION of the general public and special interest groups with ACCURATE AND RELIABLE information on TBD in the Netherlands. Both prevalence, risks, prevention, diagnosis and treatment.
# Practical SOLUTIONS as to SELF-CARE of individuals e.g. bite prevention, shared decisionmaking
RESPONSIBLE-RESPONSIVE POLITICS
URGENT: Political SOLUTIONS as to (a) INTEGRATIVE approach of TBD issues and sector policies, (b) RESOLUTION of MEDICAL DISPUTES from different schools of thought (c) closure of CRITICAL KNOWLEDGE gaps (d) PROTECTION of patients from longterm SUFFERING due to medical and social complexity and lack of understanding, compassion and (financial) resources
